Thursday, September 25, 2014

The new realities

We came home today with a lot of new realities to content with, details of every day life that now has to be worked out in painstaking minutiae.

We were given a walker and a wheelchair after the physical therapist determined that crutches were too much to deal with.

We arrived at home and s immediately perked up, happier to be amidst her toys and bed.

Now how does one manage a wheelchair in a home not suited for one?  Do we have an at-home wheelchair (ie clean) vs an outdoor wheelchair?  Where will she shower or bathe?  The surgery site still wrapped in gauze and multiple layers of bandages.  Where will she sleep?  Where will she hang out during the day?

Her pain management was tylenol with codeine for the last 24 hours.  Even s knew that codeine is not the "good stuff" as she repeatedly asks for the medicine that goes directly into her tube.  She refused to take the codeine, claiming that it tastes awful.  Secretly I feel that if she is enough pain that it would require medication, there would be less of an argument about taste.

How will she sleep?  G removed the blackboard hanging on the side of her bed (our diy babygate to prevent her from falling out of bed).  She fells asleep in her own bed tonight, snuggling with her stuff toys.  She has many and her bed is full of them.

There are many points in today's riotous commotion when I felt that I could no longer deal with one more decision.  Overwhelmed, both G and I drag ourselves to sleep to the hum of the sound machine and the intercom that we've reinstated in their room so that we can hear her calling for us.  It was the end of the day but the beginning of a different life.

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